Working on building Blaire’s confidence and strength

Blaire works so hard every single day through 6 different therapy modalities: weekly OT, Speech, PT, Equine Therapy, Augmentative & Alternative Communication (AAC) - specifically for iPad and Eye Gaze use along with Music Therapy to help build her abilities, strength, confidence and independence! We could not be more proud of Blaire and her accomplishments daily!

Building memories together

Blaire’s sister, Ellie, is one of her biggest champions! While Ellie doesn’t understand the full scope and impact that Rett will have on Blaire and her own life at the ripe age of 4, Ellie does know how to love her sister unconditionally and encourages her every day through play, cheering her on and big incredible hugs & kisses. Their sister bond is truly the best!

As a family, we have had the opportunity to make so many incredible memories since Blaire joined our family - everything from annual trips to Sarasota, FL, to trips to the lake in Indiana and Michigan. Blaire loves exploring new places and having new experiences with us, the zoo and swimming have been two highlights as of recently! We look forward to many more small and big adventures as a family in the years to come!

We must keep going to help Blaire and those impacted by Rett get the curative medicines that they need